Brooke’s Cancer Journey post from August 24, 2018

“Chemo, Cold Capping, and Other Adventures”
(A long update, grab a cup of coffee!)

In early August I started Ixempra, an infusion chemo for Stage IV breast cancer. My prior treatment of oral chemo, Xeloda, that I was on For six months was no longer as effective as seen on my PET scan in July. Since 2015 this is my third time on infusion chemo. Yesterday was my second cycle, and I’m pleased to say that Ixempra is going really well. The side effects are mostly fatigue, muscle/bone pain, some nausea. My infusion is every 3 weeks. It works out that I have usually one week of feeling sick, and two of feeling pretty well. Even the “sick” week, God has allowed me to fulfill my mommy tasks, make it to church and work and function pretty well. I attribute this to God’s grace, but also many people who love our family so well and help out in big and small ways (our parents, close friends, our church Body). We are grateful to be surrounded by people who love us very well.

I frequently get asked when the end date of this chemo is. The answer is tough- I don’t know. In this stage of the disease the plan is not as clear as earlier stage cancer when I had a clear beginning and end point of treatment. We will take decisions one scan at a time. I completely trust my medical team and feel confident in their care.

My next PET scan is scheduled in Houston on October 18, and I will meet with my MD Anderson oncologist- Dr Layman- with results October 19. In the meantime I’ll have a CT scan here in Columbia September 7.

This cycle of infusion chemo, we’ve been led to try out a newly FDA approved treatment called “cold capping” which reduces the chance of chemo hair loss by freezing the scalp during the infusion, restricting scalp capillaries, preventing the chemo to get to the hair follicles. I had heard of this before but never seriously considered it until I met women at MD Anderson last summer from around the world who had kept most of their hair during chemo. The primary reason i was compelled to explore this was for the sake of my children. They are very negatively impacted by my hair loss. I’ve completely lost my hair twice and it is a constant reminder to them that Mommy is sick. Especially Samuel, my tender hearted boy, is affected with anxiety and worry when I don’t have hair. The treatment is done with a machine called “Digni-Cap” which is a tight cap that pulses below freezing water over the scalp during the infusion. It’s painful for 30 minutes and then my scalp goes numb and it’s just more irritating than anything. If it works it will be worth it and I look forward to getting the word out about this cutting edge opportunity that few people know about. So far I haven’t had any hair loss, but most hair releases after 2nd treatment usually so the next three weeks will determine if it is working. If not, I’ll be disappointed but I trust God will help us navigate that with the children again as we have in the past.

As far as other adventures, I’m so grateful that the Lord allowed me to feel very good all summer, making special memories with my children. We bookended our summer with a vacation to Litchfield Beach thanks to some very generous people, and a family trip to NYC- showing my children the city I love to much (this was a dream trip I’d looked forward to for so long). Making memories is very important to us in these days and we are grateful for opportunities like this.


This children are settled into school and thriving at their new school, Ben Lippen, making new friends and I’ve enjoyed attending chapel with them and getting to know and pray with other moms with children attending school at this very special place. There are many reasons for the school change, but none because we were unhappy at all in their previous magnet school, CFK. That school and the family loved us so well the three years we were there and established a solid foundation and love of learning for Sam, Selah and Hannah.

Thank you for your continued prayers for me and our family. We are grateful beyond what words can express! (… and cheers to you for making it to the end of this long update!)

Brooke’s Cancer Journey Post from August 3, 2018

My journey to discover the meaning of true, biblical hope began with a breast cancer diagnosis. Throughout these years, I’ve had to answer the question that we will all answer at some point: how can I have hope when my situation feels hopeless?

I’ve spent the last three years studying the scripture, asking questions of those older and wiser, reading everything I can get my hands on about hope (especially contrasting with the world’s version of hope). Here’s what I’ve discovered:

Biblical Hope is:
1) unshakeable through Christ
2)grown in our hearts by knowing God in scripture
3)strengthened in prayer
4) empowered in a community of faith and
5) overflows onto others to point to the One who never fails us

I’m currently up way too late because I had my first chemo infusion today in 14 months. The steroids in the meds are stealing my sleep tonight. But that’s ok, because I’m spending time writing about hope.

I feel this is the message of my life- sharing the HOPE available in Christ, that it unshakeable with circumstance. Not that I’ve arrived, or hope perfectly, but I’ve been changed by true hope. A deep hope that does not disappoint. Does it always mean being happy? No- many tears shed, some today- because I had prayed I would never have to return to infusion chemo, but here we are.

And even still, I have hope.

Lord willing, I’m speaking twice about hope this fall to women’s groups- one in Columbia and one in Charleston. I’ll share details soon if you want to dig deeper into what true hope is, and how you can have it. If you’d be interested in coming let me know and I’ll be sure to get you information. I also know I need to share medical updates.

Brooke’s Cancer Journey Post from July 28, 2018

Thank you for praying for us today. We felt your prayers and God answered by giving us peace. The medical results were not what we hoped- the lung and sternum spots appear to be active again and grew a little bit. As Dr Layman says “this isn’t dire” but she recommends a change in treatment because she believes I’ve become resistant to Xeloda and suggests I start Ixempra, an infusion treatment, soon. It’s every 3 weeks. Our hope is steadfast even in disappointment because our Hope is in the only One who numbers my days, not medical ups & downs. However, we are processing this news- disappointed and shocked especially in light of how great I’m feeling -but we both have a peace which we know is from the Lord and through your prayers. We are grateful for your continued love and support ❤️ headed home.. can’t wait to give my children a big hug.

“For my life He bled and died
Christ will hold me fast
Justice has been satisfied
He will hold me fast
Raised with Him to endless life
He will hold me fast
Till our faith is turned to sight
When he comes at last.
He will hold me fast.
He will hold me fast.
For my Savior loves me so,
He will hold me fast.” (The Gettys)

Brooke’s Cancer Journey Post from May 23, 2018

Health Update: I’ve been living with cancer for over 3 years now… Stage IV cancer for 18 months.
I’m so grateful that I’m feeling great these days, despite my Stage IV Cancer Diagnosis. I am so encouraged with how I’m able to live my life to the fullest, make very special memories with my family, continue in ministry work, have energy most days, and function well in my daily life. Most days I forget about the cancer, until I have to take the 3 pink pills (Xeloda) in the morning and evening.

I continue on Xeloda, an oral chemo, for 2 weeks on, 1 week off. The side effects are definitely present, but manageable.

My next scans are Tuesday, July 17 at MD Anderson. It’s been six months since I’ve seen the care team at MD Anderson (I’ve been seen by Lexington Oncology in the meantime), and I want to stay connected to my oncologist there (Dr. Layman) in addition to my oncologist here (Dr. Stillwell). I pray that Xeloda continues to be effective to hold back the cancer, but I am thankful for the options MD Anderson can offer me if that is not the case. I have many more treatment options available, not to mention clinical trials, so I’m encouraged.
My last scan was very good and thankfully I’m responding well to chemo.

I thank God that I am feeling so good these days. I’m meeting more and more women who are surviving…even thriving… with Stage IV cancer. Women with careers, busy families, and full lives. I think as time goes on you will begin to notice there is a “new face” of Stage IV Cancer. There are many of us that are living with the disease as a chronic illness we will manage the rest of our lives. The reality is at any time the chemo could stop working and we are on to the next treatment…and eventually options could run out, but in the meantime there are new cancer developments.

Ultimately I know where my hope lies. Psalm 139:16: “Your eyes saw my unformed substance; in your book were written, every one of them, the days that were formed for me, when as yet there was none of them”
God has already written every one of my days…HE alone numbers my days. What peace this brings me!

Great hope floods my soul when I look back and see God’s faithfulness along every step of this journey (and my entire life). He provides and His mercies are new every morning! His grace is sufficient for today, and will be more than enough for each day ahead, whatever it brings!

One truth I’ve discovered through this journey is that most of my fear/anxiety/worry comes when I imagine difficult days ahead (for me AND for my family)…but I realized that when I imagine the difficulty, most of the time I imagine it without the grace to match it. That’s not reality, as the grace God grants always matches the difficulty of that day. I would prefer to “store up” the grace before the difficulty, but it doesn’t work that way. The grace is there when I need it, not necessarily on the day when I envision all the worrisome possibilities. My job: trust that the future grace will be there, and be encouraged by looking back and seeing how He’s always been faithful to provide it in the past. #Godisfaithful

Brooke’s Cancer Journey Post from April 15, 2018

Hello praying friends, please forgive my lack of update! I’m finishing my 4th cycle of the oral chemo, Xeloda.

The first two cycles were at 4000mg/ day and as it accumulated the side effects got to be absolutely horrible and I could barely function. The Lord would allow me about 4 good hours a day which happened to be in the middle of the day so I was able to continue fulfilling my responsibilities but it was very rough. My oncologist was not surprised as she predicted I could not tolerate that doseage. The third and fourth cycles I’ve been at 3000 mg/ day and I feel great! My hemoglobin (red blood count) continues to drop which affects my energy so a transfusion may be in my future. Also I have burning / peeling issues with my hands and feet which is common. Otherwise I feel great!

Yesterday I had a CT scan. Thankfully for now my scans are able to be completed in Columbia. I’ll return to Houston if there is anything suspicious or something needs to change with treatment.

I’ll get results tomorrow- my oncologists would be pleased to see no progression / growth of the disease. My prayer has been for the results to be so remarkably good that the doctors are astounded, and the only explanation is that God did it. Would you join me in praying this?

I’m grateful for each and every one of you who re following my journey , praying for me, and encouraging me!! You’ll never know how much your love has meant to our family.

“To you, O Lord, I cry, and to the Lord I plead for mercy: “What profit is there in my death, if I go down to the pit? Will the dust praise you? Will it tell of your faithfulness? Hear, O Lord, and be merciful to me! O Lord, be my helper!””
‭‭Psalms‬ ‭30:8-10‬ ‭